28 August 2014 by Rita Taylor
I’m passing this on on behalf of a friend. Please help if you can.When I was a teenager, Dad was based in Ramstein, Germany. All the british kids would get together in the school holidays and hang out in a large group. I’ve kept loosely in touch with a few of them, helped out by facebook. A few months ago, one of them got horrifying news. Her 6 year old daughter, Daisy, was diagnosed with DIPG (Diffuse Intrinsic Pontine Glioma). DIPG is a devastating brain stem cancer that has so far been incurable. It affects children, mainly between the ages of 5-10 years old. The prognosis shares a lot of the devastating problems that MND sufferers face. Unfortunately, children’s brain tumours get very little research money allocated to them.
Bristol Children’s Hospital have a research team dedicated to DIPG. They have come up with a pioneering way to get to the tumour so that they can inject chemotherapy directly into the tumour itself without (hopefully) damaging any vital functions. The implant device is 3D printed in titanium, and Daisy is the first child to try this experimental treatment. The funds raised so far in Daisy’s name have paid for an extra 2 part time researchers. Small donations are essential to charities like this, and can make a huge impact. I don’t know if Daisy can be cured, but hopefully her family will have her for longer than they would without treatment.
I’ve already made a donation, but I’m going to make another small donation to the fund for my ice bucket challenge. You can donate at Just Giving or by texting BROO65 followed by the amount to 70070.
If you can spare a little bit of money, it will make a difference right now. I did a text donation for £3 this time. I really believe that a little is better than none! If you don’t want to donate, that’s fine – thanks for reading all the way to the end. And I would love to hear if there are any charities or causes that you want more people to know about – let me know in the comments. I’d love to learn more about them xx
ETA – The fundraising page on facebook can be found here if you want to keep updated on how things are going